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Showing posts with the label Sickle cell

Aliyah Gladying – Real Lives Blog

  In my early twenties I was registered as disabled. This was during my constant hospital admissions. I was no longer able to work or study which I’ve mentioned deeply affected me. I felt too young to be disabled I didn’t want to be called it, I rejected that title, I guess in some ways my body accepted that title, my body deserved that title at the time. I just did not want to accept it because I felt embarrassed about it. For a long time I’ve felt trapped by my body held back, held down, held hostage. My body was my plague not my protection it destroyed me, it destroyed itself.   Dealing with a physical condition is challenging to say the least. It made me have to use my mind because that was all I had that was the only part of me that was somewhat free, it was the only escape I had, I had to try and switch my mind off of my pain and bring my focus onto something else, which is extremely difficult and isn’t always achievable. Learning to do my makeup was a huge distract...